Skip to main content

Chemo 5, 6 & 7

   In December 2018, I started the second part of my chemo treatment, "T' known as Paclitaxel or Taxol.  The big change from the "AC" treatment was it is a weekly infusion for a total of 12 treatments.  As I imagined, the month of December flew by as my mind was excited about Christmas and by the day after Christmas I have completed chemo 1, 2 3 & 4.
   While it's not not been smooth sailing, I do feel like it's been gentler on my system than the AC treatment.  I have Neuropathy just about every day in my fingers, a numbness where sometimes I can't even feel keyboard while typing.  But I haven't had the Nausea like I did on the AC treatment and that has led to me eating more, cooking which I enjoy, and going grocery shopping, as I didn't shop for 3 months.  Physically I've dropped another 10 pounds, peach fuzz has started sprouting in my scalp and some whiskers have returned, as I haven't shaven in 3 months.  Mentally I've continued to work through counseling about how much energy it takes for my mind and body to achieve something.  My counselor doesn't lie, chemo is like having the flue all the time, being within arm's reach of the water bottle, but continuing to look at the water bottle because you can't move to get it.  I certainly miss my energy, I am tired and fatigued all the time.
   So is the life of a Cancer patient, I've only been at the Hospital for 25 appointments in a 3 month span, each one takes allot of energy and focus to give a perspective.  In the new year, after Christmas I thought I would start to have a little fun a infusion treatments.  Look, I have a pattern Over and Over, blood tests, meeting with doctors, infusion and so on, so I thought I could just have a little fun.  It's made me laugh, smile, cry and maybe because I'm probably breaking some rule in the Hospital, quite funny that I would attempt it.  I have hooked my a Nintendo Classic up to the TV in my room.  I'm playing Super Mario Brothers here.
   First of all, these Hospital TVs are secured to wall, and the TVs don't have any visible buttons like channel, volume or input buttons, so it's not as simple as plug it into an open HDMI and change the input.  So the steps are disconnect the incoming HDMI feed from the hospital, replace it with the Nintendo HDMI and then turn the TV on from the Nurse/TV call button.  Now the first time we turned it on, we didn't know that the Nurse/TV call button reverts back to the highest volume (and no you can't turn it down, tried) we had 5 nurses in your room pronto from all the loud Nintendo beeps and jingles.  It was a quite funny site, and my first nurse who did my first AC treatment said, well that has never been attempted here, tampering with the TV, I love it.  Our nurse helped us to wrap pillows around the Nurse/TV call button to muffle the sound, works quite well.
 
Nurse/TV Call Button
Nurse/TV Call Button Muffled in Pillow

"Galaga" on Taxol 54,000 points
"Dr. Mario"
   Since Chemo 5, it has been hilarious, it's made me smile, laugh, cry you name it, took the edge right off.  I had nurses scrubbing in to watch me play, ask if Zelda, Pac-Man and Super Mario Brothers was on it, and of course, yes to all.  I like to play "Dr. Mario" it's like Tetris, but you have to kill viruses by popping pills into a bottle, so fitting in a hospital setting, ha!  I play as soon as I arrive even challenging my score with pre-meds vs infusion of Taxol, so far higher scores on the chemo.  Nurses like to hear the Super Mario Brothers jingle when they are getting meds together.  Look if you ever in your lifetime have to go through this, think out of the box as I have, HammerOn and know Chemo can be fun.

Comments

Popular posts from this blog

All of the Above

    All of the Above - how my cancer grew out of control in a short period of time and how I'm aggressively back in chemo and radiation to regain control.        July 2023, I stated to develop a wheeze in my breathing and then by mid July a cough and on July 18, 2023 I had my routine follow up scans (CT and Bone Scan).   First off, bone scan showed no additional new growth and a stable T4 from previous Feb 2021 cancer, so that was a win.  CT unfortunately showed a new large tumor in right lung with several new tumors growing in between lung sacks.  Left - March 2023 of right lung  Right - July 2023 of right lung     The image on the right is pretty telling as the  new large tumor was at the base of my lung surrounding the wind pipe which was likely causing my symptoms.  There was also a medium plural effusion at the base of my lung.  These together were starting to press the air space of my l...

3 Sentences

            Sunday, February 07. 2021 - Super Bowl Sunday, I went to the ER for a pain in my right lower abdomen under my rib cage, thinking I might have a pulmonary embolism.  So to check that out, I underwent a CT (scan #1) of my chest and top abdomen and ultrasound (scan #2) to rule out PE or gallbladder.  After a couple of hours, I got the results: no PE and nothing wrong with the gallbladder.  What I got instead was three sentences on a discharge document:     ER Report 02-07-21  Impression "3 Sentences"   Osseous metastatic disease with new T5 vertebral body lesion demonstrating epidural tumor extension. New lung nodules consistent with metastatic disease. Small right pleural effusion. Nodularity along the major fissure.  Findings concerning for malignant effusion , What followed was a TIDAL WAVE of EMOTION - WHAT? - YOU HAVE TO BE KIDDING ME.  After several choice cuss w...

HammerOn - The Story

    I wrote back in November 2018 about my battle slogan, "HammerOn."  I was actually in the process of repairing my fence in Arlington in late summer of 2018 when I was diagnosed with cancer.  Working on the fence helped me take my mind off the diagnosis, combined with my childhood memories of rebuilding fences with my Dad, really got the idea into my head from  beyond board and nails to a work ethic instilled in me to keep getting up and hammering on.  The symbolism of the HammerOn logo was cemented when o ne month into chemotherapy my cousin Andrew brought me two hammers, a  ball peen hammer belonging to our grandfather and a framing hammer belonging to his dad which were used to hammer on metal and wood.  I instantly felt connected to the hammers, through the spirt of my Dad and Andrew's Dad whom both died of cancer.  My backyard fence at time of diagnosis - Aug/Sep 2018       My cancer experience while positive w...