Skip to main content

Day 133

    Day 133 - Wednesday, February 20, 2019 - Number of days from Infusion 1 to Infusion 20.  Like one of my favorite EDM songs by No Mana called "Over and Over" - that has been the pattern of my life for 133 days, a pattern of repeated tasks every week to put my body through chemotherapy treatment.  I've grown to live with it you might say.  It's the first part of treatment, the first hurdle, 20 side affects long including death.  It all fell into my lap - I walked out of Infusion for the last time, hugged my nurses and I couldn't hold anything back, my eyes flowing with tears.  Tears of celebration that I just accomplished this and tears of this struggle with life and treatment all at the same time.  What kept me going?  All of it and especially People.  Prayers and the shear gratitude of others, the internal will to fight on, to Hammer On.  The other moments, all equally important; 384 miles of driving trips from home, 40 vitals, 17 blood lab tests, 20 infusions, 6 scans MRI, PET, CT, Xray, Echo just to name a few, pains, laughing, sleepless nights, mediations, etc.  But it was really the people that formed my Cancer Team that I'm going to celebrate from my memories of Chemo.  Like how I was born a Sibley and Edwin who draws my blood has been there for 40 plus years and knew my delivery doctor.  How Marissa pointed out that if I fill my mouth with ice during AC treatments, it decreases the chance of mouth sores.  Or how I showed Elana how easy it was to hook up Nintendo to the Oncology TVs in the patient rooms and Alexus helping me muffle the call station in a pillow so the Nintendo wouldn't be so loud, Alex said, "well we have never had anyone hook up a gaming system before, I love it."  Countless wellness talks with Jackie, learning about micro losses, and how hard energy takes a hit, and helping me in the darkest days feel like bright sunshine.  Extra water, warm blankets, pillows are just pushing the Benadryl last so I could play a little more Nintendo before falling asleep, all the little touches that go a long way.

By the Numbers:

AC - 2 months October and November
T - 3 months December, January, February

Day 133 - Done

Day 134 begins the next stage, "the in between" leading up to Surgery.

Entrance to Medical Oncology - Last Day

Day 1 - First Day of Chemo
Day 133 - Last Day of Chemo

Last Chemo


Comments

Popular posts from this blog

Day 0

It was September 12, 2018, there I laid in the Ultrasound office, just me, on the white paper looking at the ceiling, thinking. I already knew. The next day, my mind was racing with multiple thoughts, remembrance of family, history, past images and friends all flowing in and out. I knelt at church crying, full of tears, asking why is all of this in my head. But something happened the days after and when the biopsy confirmed Cancer, I felt my mind leave my body. I would see and feel something off to the right and my attitude changed, my mind started thinking about solutions. Solutions developed over the weeks into things that I could do to keep my attitude positive and my mind going, even if my body didn’t want to respond. I began writing words and phrases surrounding my name on a blank piece of paper. Words can’t really describe it, perhaps it was my Dad, a 16 year Cancer Fighter acting as Heaven Guardian Angel looking over me, communicating to my mind spiritually in a way that as…

Jackpot

It's Tuesday evening, October 23, 2018, the world around me is in the lottery $1.6 billion buzz, while I'm thinking about my next treatment and looking back on Chemo Round 1.  Round 1 started on Friday, October 12, 2018 which was pushed 3 days because I had a stomach virus, yeah so puking before Chemo, how fashionable of me, a friend of mine with Cancer called me an over achiever. 
    As I sat there on Day 1, my head filled with what they call the "Fog" it filled within my head, my arms and fingers, a somewhat tingly feeling all over.  Other than that, I sat there in my chair talking with my wife, looking out the window and carrying on a normal day.  Well, the new normal.  I just have the mindset to put one step in front of each other and HammerOn, if I sit there and sulk it ain't going to get me anywhere.   

My medications are prescribed below for the Days 1-4.
Day 1 - Chemo "AC" (Doxorubicin called Adriamycin "A" and Cyclophosphamide Cy…

Thumbs Up!

The day had come, Feb 6, 2019 - 5.48pm, my first breast MRI scan since I began my treatment in October 2018 for Stage 3 male breast cancer.  This is what they call the "scan" it's pretty huge for cancer patients as it shows how the cancer is.  I had had trouble with the first scan, getting overly hot as I lay face down wrapped in blankets in an MRI that I didn't lay on my back for.  So I knew going in, I would just be wearing a gown and try to get as much airflow around my head to make me more comfortable.   I had just finished my 14th cumulative chemo about 1 hour before, armed with another IV stuck in my hand right hand for the MRI contrast, I had the technician snap this photo of me standing beside my machine, with my cell phone on the safe zone as no metal is allowed in the room.  I gave the "Thumbs Up" with my left hand. 
   The scan, went great well sort-of, I was definitely cool and had good airflow around my head, so I didn't have to stop the…